I would just like to say hi to everyone , i suffer with ppms and all it’s torments and decided to join and hopefully make some friends allong the way
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Welcome Richard,
Everyone here is incredibly friendly and welcoming, it can be a godsend to chat with people who really do know how you feel.
Take Care,
Nina
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Hi Richard and welcome to the gang!
So glad you found us. We’re a very support and friendly group…loads of advice, support, friendship and laughs…so you’ve found the right place.
Where are you from? I’m in wet & soggy north London.
Looking forward to getting to know you. We always love to have a new member!
Pat xx
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Hi Richard and welcome. Your welcome to join the club no one wants to be in. It’s funny really none of us wanna be here yet get so much from just knowing there are others who know what you are going through. We are in the whole friendly enough apart from me. I have a saying 'I hate computers and kid’s other than that I am a friendly type of guy.
Signing off for now.
Don
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Hello Richard,
Pleased to meet you. Like Bart says, “none of us want to be here…”, but since we are we make the best of it. And someone who hates computers and children can’t be all bad. Have you got any other endearing traits Don?
Anthony (PPMS)
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Welcome.Just come on here when you want to chat.Even when you just need to moan and rant and rave we are here for you.We all have our good days and bad.Jo xx
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Hi Richard, I am Polly and live on the Isle of Wight. I also have ppms
Take Care
Polly x
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Hi Richard,
I have phases of visiting this forum, and I always find it very pleasant. I’m sure you will find it a good place to come for any tips etc.!
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hi Pat i live in County Durham in the North East thankyou very much for replying to my post.x
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Welcome to the forum Richard
Pam x
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Hi Richard,
Just another hello from a PPMSer. Welcome aboard too. I usually dip in daily and sometimes add a wee comment or two. I really does help to know there are others spread all over the UK who find help and support and sometimes a wee a “argument” and I mean that in the broadest terms. Often folk just need to get frustrations, etc off their chests.
Look forward to hearing from you again.
Kind regards, Anne (1946)
PS You’ll maybe gather from my accent that I’m from the North of the border. (It takes all kinds)
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Hi and welcome
J x
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Hi Richard welcome to our club, you have to be very special to belong to this team so welcome. We all have something to say and some times it helps, so join in. All the best Deborah
(take a look if you get a moment at my blog) http://www.amazon-lady.com
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Hi all,
I have been told i have PPMS but the last time i saw my neurologist sent me for a load of blood test .which all came back clear ( this which i got from my doctor from a letter he was sent) and it also just said will review again soon. Is this Normal?.
I have not been offered to ms nurse or any treatment.
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Welcome, Richard and I hope all these posts tell you that you will get loads of support here. Whenever I come on with a problem, somebody always has an answer, and when you feel down and desperate, knowing that so many other people are battling on too gives you strength to keep going. Good luck!
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Hi Winker and welcome to the board.
Nothing about MS would show up in a blood test so it means that you are clear of anything else. MS is diagnosed usually by a combinations of symptoms plus results of MRI and sometimes plus a lumbar puncture.
PPMS is diagnosed when there are no obvious relapses and remissions in the symptoms.
Unfortunately there is no treatment for PPMS…only pain meds and stuff that can help with symptoms, but nothing to stop or slow down the PPMS itself. Although there is a lot of research going on to find something that helps.
Not every hospital has MS nurses but it’s something you could ask about when you next see neuro.
I hope you find this board helpful. We are a friendly lot and always nice to have a new member…even though it’s a gang you wouldn’t have chosen to join!
All the best and hope this info is useful,
Pat xx
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Hi Richard
Welcome to the club. Be safe, take care. M
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Hi Snow Leopard,
Thanks for the welcome.it will be nice to speak to people who are in the same boat.
Ken xx
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HI Richard and a very big Welcome,
Like you say no one wants to be in this Club. However. You will find lots of friends on here. I really do consider these people my friends. We may never have met face to face, but does that have to happen to have friends? Of course it is preferable but these are my pen pals. We make each other life, cry, think about things etc. etc. Great bunch.
One of my Drs said MS is the most mercurial disease he knows. That is why it is so difficult to diagnose an then for each and every person there is a different path. So do, please come on here and discuss any worries. You are bound to have found someone who has had the same thing.
Remember though. Not everything is MS related. Don’t let yourself or Drs just say “oh must be the MS”. AS if we haven’t been given enough to shoulder, we can still get all the other things other people can get??? !!!
Take good care and look forward to hearing more from you.
Anne
x
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Hi Richard, welcome to the club nobody wants to be in. I struggled for 6 years before I came on here and was in a very dark place and although I still get black days the lovely people on here have really helped. I don’t feel I’m the only one anymore and have found out all the oddness of this illness is quite normal.
Mags xx
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