Hi, My ortho consultant has referred me to neurologist for what he suspects is MS. This diagnosis was originally considered about 14 years ago by my GP at the time due to eye lid droop and muscle spasms. MRI was clear then so was dropped. Now it is on the cards again, but this time I have a feeling it is more likely. Over last ten years I have suffered with muscle spasms in legs arms and back. Pins and needles in legs, arms, hands and feet. Numb sensation in neck and face that comes and goes. Feeling of ice up my cervical spine into base of skull for days at a time. Pain in legs and arms, stiffness in legs sometimes making it difficult to walk. Pubis and coccyx pain with periformis syndrome. After coming back from a hot country last year I had weeks off work as I had leg and back pain and couldn’t walk properly for weeks. A few years ago, I had trouble swallowing and felt like something was stuck in my throat - barium swallow was normal. Periodic abdo pain and dizziness. I can be clumsy and trip over nothing.
Current constant symptoms are leg pain and numbness. Neuropathic pain in feet. Loss of sensation in private area, abdo pain, pins and needles in arms, arm pain and hip pain.
Neurology waiting time is unknown at the moment, referral has been received but being triaged. I am trying not to think about it but get emotional at times due to the unknown wait. Normal blood tests all been normal and ortho convinced I have a neurological problem. I assume tests will take months and ironically I have worked in NHS since 1991 and used to be a volunteer with the MS society before I moved areas in the 90s.
I feel better just writing this all down and I hope I am wrong about the diagnosis. Thanks for reading this.
Hospital are hoping i will have my first appointment within weeks so that is good news. Last 3 days had problems ‘getting my legs to work’ as i describe it, especially after sitting down, even for a few minutes not helped by right foot pain. I am walking very oddly and staff at work are noticing - in the past they have also said your limping or not walking properly and i have suffered with ‘foot drop’ on and off as noticed by my physio.
I seem to have episodes of my legs not wanting to work - it might only be a matter of days or as last year it was about 6 weeks. Usually accompanied by pain in leg and back. I am unable to lie on my left leg due to pain/sensation when i do and this has been a problem for a number of years and my ortho consultant in 2015 said it will probably never go away but didn’t offer any thoughts as to the cause- again this may fit in with MS on researching it.
I am aware that MS is only a possible diagnosis but the more i have read about it on the official sites (not Mr Google) the more it seems to fit my various issues over the last 14 or so years that have in some parts come and gone and in others keep returning for longer periods and with more discomfort.