Hi there I guess I’m just here to sound off and get peoples thoughts as to whether I’m being irrational or I have a reason to try and push for further testing.
So my background…
i have had various neurological symptoms/ sensations for around 5 years now. These include…
tingling in hands,feet, and legs. Mainly on my left side.
Numb sensations on fingers and toes although they aren’t numb to touch.
Twitching mostly in my legs but also around other parts of the body.
Burning points on back.
Buzzing points on legs.
Vibrating sensations on bottom of feet or toes.
Pain that doesn’t ease with pain killers in my ankle/feet/calf of left leg.
Pain in forearm of left arm.
Odd pains in left eye and eye generally just feels uncomfortable but never lost vision etc
odd dizzy spells
days I just don’t feel right
muscles tire easily
some days I find it hard to concentrate but this isn’t often.
Ive been seen by three neurologists. The first did a brain scan which was clear and put symptoms down to FND
second one was after my first baby and I had a private scan which was also clear and he said symtoms would just go away.
Third one was more recently after my second baby. I suffered a major anxiety crisis and ended up being seen by the mental health team due to the anxiety over having MS. I saw a private consultant who reassured me it wasn’t MS and sent me for nerve testing to rule out carpal tunnel. I’m awaiting results, although it’s been a bout a month now and not heard anything.
I feel like now I’ve had this anxiety attack, my GP just puts all my symptoms down to anxiety and I’m scared something is being missed. She says she sees so many patients similar to myself where they just can’t say what’s causing the sensations but they are real. I am waiting on CBT which she feels will be really helpful.
My worries are still pretty high, especially as the last couple of days my foot and leg have been so painful and I’ve had a twitchy, vibrating foot for days now.
Should i I be pushing for a scan of my spine, could I have lesions lower down than the cervical spine and that’s what is causing the leg issues.
I hate that everyday I am waking up scared about whether part of my body is going to fail me, whether today is the day something horrible happens to me that would really point to MS
my Mother has MS and it’s my biggest fear. Her life has been ruined by it (Dad left her, lives on her own, has no quality of life and has now being diagnosed with dementia at 62)
i know I have a lot of anxiety around having MS and that def won’t be helping the disputation but I equally don’t want that to be covering up that I may actually have MS!
thank you for listening and hopefully understanding my situation