read this. A poem by my daughter Joni.

Like a jigsaw, I see the cracks but it’s not broken, Speech impaired, words still spoken A cautious step a busy mind Mourning the man you left behind

Days spent tinkering in your workshop The dream, but this disease won’t stop Caged in by that two letter word A new way of life a life so absurd

But in the darkness light always shines through Three little hearts now so close to you Popsy now and Popsy then Live in the laughter like it won’t happen again

For all you’ve lost look at what you’ve gained In all the chaos peace maintained Your pockets may be lighter But our bond has never been tighter

Remember the climb not the fall Because Dad it is better to have lived and lost than never to have lived at all.

I wrote this with tears in my eyes as when she gave it me (the three little hearts are my grandchildren) they know that Popsy has a wobbly hand and a limp but they DON’T CARE at all.

Regards Carllaugh

1 Like

oh crikwy

i willl reply when i stop soobing…

el

That is wonderful Carl. heart

Believe every word because although I’ve never met you I know how much you love being in your workshop.

Take lots of care

Carole x

Hi Catwoman

Trust you’re well.

Thanks for your reply. It’s heart wrenching to me my daughter doesn’t see it she says it’s just words and it’s not real poetry like my wife’s.

Regards Carllaugh

carl

In all the chaos peace maintained

thast the line that got me!

i have kmown for severasl years that my real challengw is to have balance and stability within contiuous change. not my own worsd but thats how i try to live with ms. my 4 gransdughters ages 2-7 see me ans not the chair as they have knowm no differnt.

the wods of yuor dughter are the most powerful that i have read anywherr in a long time.

thanks to her for writmg and yuo for sharing.

el

El

your words are very moving too!

thanks both Carl and yourself xx

How beautiful . And how blessed to have grandchildren! Did make me well up xx

Hi Minnie Mouse

Trust you’re well. Thanks for taking the time to reply.

This MS annoyance is quite new to me I went from normal (what is normal) to Hospital - Xray - ct scan - MRI - lumber puncture - you’'ve got MS in two weeks. Now bad tremor in right arm/hand double vision speech comes and goes and limp in right leg. This all started JULY last year.

Our grandchildren play a big part in our lives 2 boys at 5+ and 2+ and one granddaughter born February this year. The best way sum it up is I would stand in front of a train for them if that was needed.

Regards Carllaugh

beautiful.

Boudsxx

Hi El

Trust you’re well. This MS annoyance is still quite new to me I went from normal (what is normal?) to you’ve got MS in about two weeks July last year. Stopped driving sold my car and given up work for time being I was/am an Audiologist before that I was a specialised welder/fabricator.

I now have bad arm/hand tremor in the right and limp in the right, double vision comes and goes, speech comes and goes. I try to carry on as normal at home (we have a small farm we don’t farm at all we’re all vegan even the grand children).

Regards Carllaugh

Hi Bouds

Trust your well. Thanks for taking the time to reply.

Regards Carllaugh

carl

ms annoyance-i am goingf to use that!devil

el