My name is Claudia, I'm 25 and I was diagnosed over a month ago with RRMS.
I decided to get my tests and consequent diagnosis done in Italy, where I am originally from, as things here were moving super slowly and I have felt pretty let down by the doctors I have seen in the UK.
Since my diagnosis I tried to get the ball rolling here as well as my neurologist in Italy suggested that I should eventually start Tecfidera (she said that it wasn't urgent, whatever that means) but she would like that I was prescribed it from a doctor in the UK as I would need to be monitored, and moving between countries it's quite complex right now.
After 3 weeks of chasing I was confirmed an appointment on the 2nd of December, is it me being very unlucky and experiencing all of this waiting time because I live in London or is it similar everywhere else? On that first appointment will they simply accept my original and translated diagnosis and prescribe me the same meds? In my worse nightmares I have to do the LP again.
In all of this I have just started my final year in Uni, in a course I have put so much effort and dedication in. I am starting to feel the pressure of all this life changing events happening all at ones. I have worked so hard to get where I am and now it feels like the ground beneath me disappeared. I really feel so frustrated at times. I have started seeing a therapist and I'm looking for a support group but it seems quite hard to access to even online ones:(
If anyone has any uplifting MS story to share, any good advice and wise words, I'm ready for that.
Thank you and hope you are all keeping safe!