Hey my names Otay I’m new, I have symptoms that seem consistent with damage to the myelin sheath, but my doctors are not taking me seriously. I’ve been questioning myself and my judgement, so I’m reaching out to this community for a sanity check.
For many years now, I’ve had:
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Heat sensitivity, and freezing pain in hands, relieved by exercise, but worsening
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Tingling in extremities
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Frequent urination, periodic and worsening
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Dizziness upon standing
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Cognitive fog, memory problems
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Difficulty swallowing or burping
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Glowy vision, seeing stars in sunlight
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Neck pain, and aches in a band shape around my back (periodic)
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Difficulty sleeping, due to the above list
As of the last two months, after my recent “attacks” or “flare ups” or “episodes” (whatever you want to call them,) I’ve had:
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Weakness in parts of my hands, and once in my foot (brief, sporadic)
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Vertigo (periodic, improved after flare up ended)
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Eye pain, in one eye (periodic, infrequent, brief)
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Lump in throat
I’ve recently lost my job because of these symptoms, and I have always struggled to meet people’s expectations due to them.
In response to this list, my neurologist said that frequent urination is never a neurological issue, and that my issues are all caused by central sensitivity. He said that 20% - 30% of the population have the same problem, and then recommended I ask my primary care doctor for SSRIs.
I brought my mom with me, which I dont normally do on doctor visits, but the doctor made a very odd comment about her being there. He said “if your mother cut you off, your body would automatically balance itself out to survive, and all your symptoms would go away.”
I’m baffled and suspicious about this consultation, I feel as though I have done something wrong. The doctor is giving me an MRI next week, just for peace of mind. He assures me they won’t find anything. I know googling doesnt qualify me as knowledgeable, but I’ve found websites that say all of these symptoms are potentially caused by MS.
So what do you all think? Am I a crazy hypochondriac? Is there anything I should do to make sure the MRI scan checks what it needs to?