Having been on this undiagnosed treadmill since May, I finally made it back to work 2 weeks ago. Whilst they are being very understanding and I am on a phased return (up to 5 hours a day next week - eek) I am finding the energy required difficult to keep up. I no longer have the vertigo, blurred vision or heavy limbs, but the twitching muscles and numbness are starting to creep back and pick up pace. Although I don’t want to stress unnecessarily, I am slightly concerned that it will again become too difficult to summon up the energy required.
Hoping that the next month or so goes by quickly and the MRI results come up with some answers. Why does each step of the process seem to take longer than the last? Very strange, as many others have said, to be wanting something to be identifiably wrong!
Also worried about how much the other half is always worrying, it’s good that he cares, but he has his own health problems to think about without not knowing what’s going on with me.
At least the sun is shining and there’s still some warmth in it. Don’t want to start getting that Sunday evening dread of the working week again so going to try some mindfulness.
Good luck with work. It can be very daunting going back so it’s nice to hear how supportive they’ve been. I’m about to enter my third week off with a relapse, hate having to take time but I just was pushing myself too hard.
I use meditation and mindfulness as well. Really can help!
I think wanting to have a diagnosis of MS (or something else) is common amongst people being tested for MS or living in ‘limboland’. It’s very hard to keep going when you have symptoms / relapses but can’t come right out and say ‘I have X’ (or Y). And actually being given the diagnosis of MS at least gives you access to DMDs and other drugs to help with symptoms.
Once you start taking a good DMD, and have other symptom relief drugs, I’m sure you’ll find it easier to manage work. And there’s always Access to Work, who can help with some of the practicalities. But generally it’s easier to get help once you’ve been given a diagnosis.
I hope you get the results from your MRI soon and some practical help in order to get back to working and having a life.
You could try taking magnesium to help with your twitchy legs, it works for me. You can also get it in a spray too, which some people swear by, but I’ve not tried it yet. Good luck with your phased return to work. Sharon x