I have MS, and had to stop working as a doctor because of MS-related fatigue
What does the MS Society think about this weeks BMJ report that people with MS die, on average, age 66?
See : Figure 5 in https://www.gov.uk/government/uploads/system/uploads/attachment_data/fil...
I had been told that death occurred ‘a few years earlier’ with MS than in the general population.
66 is not ‘a few years’ earlier!
This is much worse than for other neurological conditions : “The mean age of death among people with a neurological disorder was 74—four years less than the mean age of death from all causes”
I’m going to read the full report – its at https://www.gov.uk/government/uploads/system/uploads/attachment_data/fil...
I especially want to see if there is any time trend data
But this does raise very significant issues for me
Including about the DMARDs – which I’ve avoided taking for 30 years.
Are they disease modifying, but not death modifying?
Or would it be / is it even worse without them?
What do you think?
And why aren't you commenting on the BMJ rapid response system?