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What Is Your MS Nurse Like

i everyone

just trying to find out thoughts regarding 

the difference in a good MS nurse and a not so good nurse

and can you change your nurse



I have MS

Hi Paddy

Mine is great. She is an ex bowel and bladder nurse who took on the role after my previous nurse sadly died. So I already knew her quite well.

Within weeks it seemed, she was pretty much up to speed and has only improved as her experience grows. She actually has a roster of 500 patients, although I’m sure that’s the number of people eligible for her services, many people manage to do without a nurse. Regardless, she has a huge number of people to see and help, yet manages to give each person enough time and support. 

I don’t know if it’s possible to change, I should think it depends on the area you live in. I assume from the way you’ve posed that question you are unhappy with your MS nurse?


Really good. I am at Southampton General Hospital where we have access to a team of excellent MS nurses.

My MS Nurse is very knowledgeable & approachable.  She was a Ward Sister in the neurological department at the Western Sussex Hospital,  before becoming our MS Nurse....with a caseload of at least 400 MS patients.  She is soon to retire & will be truly missed. 

Whoops ! quadruple lot sorry.

I have MS

You can delete the duplicates, I just looked at this thread thinking loads of people had said what their nurse was like! smiley

I have MS


Do not do anything for me, unfortunately.  We have have a week waiting time to book a telephone appointment - never mind trying to see them (months or years).  Even then I do not get to speak to them but another type of neurological nurse.

Still I have family. Yay!

Take care,



I have MS

What MS nurse would that be? Might be nice to have one!