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Cladribine

Hi Everyone,

I am 29 and recently diagnosed. My Neuro has suggested a Cladribine trial (currently under The Royal London). Does anyone have an advice/experience of this drug? It's currently not licensed in the UK yet so am just looking for any advise anyone might have. My head is swimming round with information at the moment so any advice would be greatly appreciated.

 

Thanks,

Emma. 

 Hi everyone.

I am relatively new to this although I have been a member for some time. But the Cladribine post really struck me. I am 49

and have had MS for 13 years. Now active SPMS. No DMDs with the exception of a brief spell on Rebif until my body said no!

My Neuro has suggested Cladribine so I am waiting for an appointment from Barts. I have read so much and really am buried in

a mountain of questions. I would appreciate any advice too.

HAVE YOU LOOKED AT BART'S BLOG SPOT?

(sorry for the block capitals)

good luck

carole x

Try putting 'cladribine' in the search box on this site to read about my experience.  Too depressing to describe in full here.