RRMS -> what next?

Hi all, I’m new to MS Society. My husband has had RRMS for 14 years. He has been pretty lucky for the last two. He is now relapsing and I just wondered, what now? Will it become secondary or primary progressive, or will he carry on the same? Thanks in advance for any insight

Is your husband on any drug therapy Emmilou? And what’s happening about this relapse, has it been confirmed as one and has he been prescribed iv steroids or what?

Hi, nobody knows this I’m afraid. I was RRMS, I am now SPMS, has took a long time though. I was diagnosed, in a week I add, with RRMS, I had obviously had it quite some time to be diagnosed so quickly, but as far as will it be? I have no answer, I believe nobody will. It could take many years to progress, it could not, loaded gun unfortunately, sorry to be of little help, but if it’s any consolation, I manage, not all the time granted, but I do my best, what will be will be, long as alls good right now Tracey x

Hi Poppy, He was given methylpred in tablet form as he worsened over the weekend but has to go in for IV methylpred tomorrow. He is in a lot of pain and is in spasm, if not then the stiffness and metal head as he calls it is almost unbearable. He takes pregablin and clonazepam for the pain but nothing works. Thanks for replying Emma

Hi Tracey, Thanks for replying, I really struggle living with the uncertainty of MS. I genuinely admire anyone who faces this dreadful illness. How do you keep so optimistic? Thanks again Emma

hi emma

that metallic taste is horrible.

i craved fresh pineapple when i had iv steroids.

CBD oil is supposed to be good for pain and spasms.

carole x

What is CBD oil? I’ve never heard of it. He had beta interferon which made him extremely poorly, he’s tried gabapentin, he had cyclophosphamide twice but became disease tolerant. He has tried so many things and they either make him worse or do nothing. Thanks Carole x

Hi, just to mention something to you Em, RRMS can turn to SPMS, but not PPMS.

PPMS starts out as just that as it progresses right from day 1.

pollsx

hi emma

CBD oil is derived from cannabis but is legal.

sativex does the same but people who had it prescribed for years can no longer get it because of NICE.

i haven’t tried either but will if need to.

carole x