This post is just me reaching out for some friendly advice.
My Mum has had MS for over 20 years now and more recently things have started to deteriorate, most noticeably her memory. She loses things and forgets conversations we have had, even if they were half an hour ago. I understand this is all part of MS and some days are better than others. She has had PIP assessments before, but this time they called the house when I was out and my dad was upstairs. The assessment team questioned her about the forms and she was on the phone for nearly half an hour, to which the person mum spoke to made a comment about her being able to talk on the phone for that long, she was in such a state when I got back, I tried to calm her but she was so upset that she couldnt remember any of the conversation she had apart from what the person said at the end. She said they were just quick firing questions at her. She got so stressed out by it she has been in bed now for the last 2 days, just too exhausted to get up and her back is really painful.
This post is more about my frustration with the PIP process and how they can treat people with MS so unfairly. I just dont know how to make the process easier for her, Its hard enough seeing her in pain day after day but this as well. It's like they are trying to catch people with MS out, like they are faking it. No one would chose to have MS I'm sure, and it has to be diagnosed by a doctor through brain scans and assessments. I just dont understand how they can get away with this. Sorry, I'm writing this with tears of frustration and just wanted to know if anyone else has experienced anything similar.
Thank you.Topics Emotional support Families and carers