hi all …don’t know if i’m covering old ground but does anyone know if there is ever going to be a live chat room on ms society website?..would be a good addition to the forums…
baz
Try googling Joolys Joint. The instructions on how to join and therefore be part of the live chat are there.
Sue
How do u cope with having ms, I’m 16 and have just been diagnosed with ms and I’m finding it really hard
Hi Yousaff, welcome to the forum.
You’ve tagged onto an old post.
You’d be better starting your own with your question.
Just click on new thread and there you go!
Pollsx
I am a suffer of MS who has just come of Plegridy because of side affects and soon to start Gilenya . Can anyone give me any news on the drug Gilenya for a MS suffer?
Hi this is Scotty how is everyone coping in this world with MS?
Hi, I am new to this forum. I have been diagnosed with MS since I was 14 and now I’m 57. I’ve been on many of the meds to help with the slowing of the progression of this disease. I am currently in the process of setting up getting started on Gilenya. I’ve had the test for the JC virus and it came back Negative, so I’m at a lower chance of getting the PML side affect. I’m still kind of nervous about it though. Is anyone else taking this med? I’d love to hear your experience.
No idea. sorry.
Does anyone suffer from swollen ankles and feet?
and
what causes it?
I have similar symptoms to MS I haven’t got diagnose but I getting tests on me in few weeks I’m little scared to be honest. Does any feel movements in brains ?
Sorry I meant does anyone feel movements in the brain?
Hello
Welcome to the forum. You probably don’t get how this all works yet, but you might be better off starting a New Thread (see the button above the list of existing threads). You give your thread an appropriate title then say what you need to know, thoughts, views, ideas, whatever you want. Also, you’d perhaps be better putting you thread in Newly/Un-diagnosed.
When you say you have ‘similar symptoms to MS’, you should be aware that there are many, many symptoms that could be part of an MS diagnosis, but also could be part of something completely different. So whatever you symptoms are, it doesn’t necessarily follow that you have, or even might have, MS.
Have you seen a neurologist yet? What did s/he say that made you think it might be MS? And which tests are you having?
In terms of your question regarding to feeling movements in the brain, I’m not sure what you mean really, I’ve never experienced anything that I could describe that way.
Best of luck for your ongoing testing.
Sue
I’m sorry I have tingling in body my feet are cold sometimes my balance off I have bad headache in back of head when I say movements it feel like I can feel everything in my head like Electric zaps in my head & middle of my back hurts its feel like my brain is playing trick on me I can feel it too & I talk to my primary doctor she told me it could be Peripheral neuropathy so I was okay but I kept feeling pressure in head my ear started to ringing I think losing hearing in left ear then I had difficulty swallowing it felt like somebody was twisting my vocal cords & it made my left side tingle little Then I went back I told her something not right in brain then she told to get cat scan then that was normal & she schedule me to see neurologist in few weeks so they can do some nerves test
Could a huge number of reason.
Water retention, poor circulation, kidney failure, heart disease, obesity, pregnancy, strains & sprains, god the list is endless.
Are you asking if it’s MS related ?
1 Like
Hi LuckyB Keep a diary of your symptoms / problems that you have, the neurologist will do some physical tests and ask questions about your health and any illnesses. He may ask for some other tests but only a neurologist can say for sure if you have MS Kay
Okay thanks I will
I also suffer from swollen ankles and knees and saw my doctor. He checked my heart etc, and said it was probably due to my imbalance. I will mention it when I see my neurologist
Hi! I am new to the forum, and I am looking for people I can talk to about my condition. Any takers please?
Welcome to the forum BellaAnn.
You can start a new conversation by hitting the New Thread button, give your Thread a relevant title, then fill us in on what you’d like to talk about.
Sue
I was diagnosed two and a half years ago, but had had symptoms for about 30 years. I am 77 years old. I live alone, and no one to confide in about my illness. I feel very alone. How do I cope with the very low feeling?